Closer to a Cure
One Degree at a Time
info@thescoliosisfoundation.org

(513) 213-0998

(513) 203-5533
Site Search
Counter
Thank You for the Support
You need Java to see this applet.
Hosting by Yahoo! Web Hosting
Stories (with Albums)
(click on picture for
album)
“Becoming a parent is one of the greatest joys in the world. When we
became pregnant, we were absolutely thrilled. To make it even more
special, it was a boy. On October 13th, 2005 we welcomed
Aiden into this world. The pregnancy and delivery went on without a
hitch. It wasn’t until a month after Aiden was born that we realized
something wasn’t quite right. We presented our concerns to our
pediatrician, but it wasn’t until September 2006 that our worst fears were
confirmed. Something was wrong with our baby boy.

We took Aiden to Cincinnati Children’s Hospital Medical Center’s
Orthopedic Department to see the best of the best, Dr. Charles T.
Mehlman. After x-rays of Aiden’s back, it was determined that his curve
measured at 72 degrees. At that point, Aiden was diagnosed with Infantile  
Idiopathic Scoliosis. Not only was Aiden very young, just under a year
old, but he also had the issues of being a male and a left curvature of the
spine. Over the last 5 years, Aiden’s degree curvature has fluctuated many
times. With the treatment plan of 1
2 Risser (pronounced Riz-zer) body
casts,
2 Mehta cast, and 2 different braces (Milwaukee and TLSO), Aiden’s
curve is
still at 72 degrees.

We visit Cincinnati Children’s Hospital Medical Center every 3 months
for x-rays, degree measurement, and treatment options and pray that the
curvature does not increase. Unfortunately, it has steadily begun to
increase again in the recent months despite the gains made early in
treatment. A
fter numerous tests and doctor meetings, it was decided that
Aiden should have the grow rod surgery. His scheduled date for the
operation is November 21, 2012.

The thought of our son being put through so much pain is
inconceivable. This is why a cure is needed now! Aiden continues to
amaze us everyday by doing things that “normal” kids can do, and we
could not have been blessed with a better baby boy. We hope for your
support in helping Aiden and the others like him who continue to fight
this debilitating condition “One Degree at a Time.”
I'm new to this but wanted to thank everyone for the posts that I've
been able to read. I'm a 38 yr old, male. With Congenital Stenosis
Scoliosis with Kiple Feil syndrom. I had my 1st surgery in 1984 and
have had 10 others I think... after awhile they all ran together. I live in
Michigan but all but my last surgery Jan 18th 2010, was done in
Minneapolis, MN. At the Twin City Spine Center. I will be keeping an
eye on this site to post more, But I have to go lay down now. Again
thanks for the Site!
Hi everyone, my name's Emily and I learned I had scoliosis when I was
13 and for my family a brace or surgery was never an option. About a
year ago I discovered the Schroth program. It is popular in europe and
has been around for 80-some years. It focuses on decreasing rotation
and the curve measurement with physical exercises that take about half
an hour for 5 or 6 days a week and I also go to Boston (2 hours from
my home) once a month for a visit with my doctor Dr. Mark
Moramarco. The exercises are not very straining and require little
equipment, they are about isolating and focusing on certain muscles in
your body. It has been so good for me, I have gained a lot of control
over my body and my curve and my back pain has decreased
dramatically. The exercises has also helped keep me in shape. The
Schroth method is really great for me and for my family, it is very
comforting to finally have some control over my scoliosis. If anyone
would like to learn more about Schroth I'd be happy to talk with you.
Again, it's been really great for me. :)
__________________________________________________________________________
__________________________________________________________________________
Troy Bowcamp
Aiden Johnson
Emily Seymour
Follow CincyScoliosis on Twitter
Follow Us